So after the burnout of the education and lack of support crisis, which lead to home education and lack respite, the fight for an appropriate school provision (which had only just been won for Caitlin, but Logan's journey was still outstanding), and a safeguarding enquiry... We roll straight into a global pandemic! Wow! What can … Continue reading The Gap: Part 3 – PANDEMIC – no one panic!
Tag: sensory
Getting better: it’s hard.
When you are ill or suffering from post illness chronic fatigue, it is vital that you rest. But it's really hard because somethings in life don't just stop when you are ill. You still have to get on with things, and when you are primary carer to 2 complex children the days are very much … Continue reading Getting better: it’s hard.
Therapy Camp
Well, we have had the most amazing time at camp. Exhausting but amazing. We had gone because the children needed to have SAI (Sensory Attachment Intervention) assessments done. These are assessments which will go beyond a standard Occupational Therapist assessment and tap into specialist attachment knowledge to try and identify which areas flagged are likely … Continue reading Therapy Camp
Aching muscles, processing pain.
It's hard for Caitlin to understand pain. Well, her and Logan both in all honesty, but her more so. When she first came to live with us I remember her being jabbed with 2 needles and not even knowing if it had happened. She genuinely asked me if they had done it yet. Or when … Continue reading Aching muscles, processing pain.
30 Days Wild – Day 7
So... Ummmmmm.... Yeah.... Day 7. We enjoyed some time outdoors... We laughed and we tried to kill eachother... We had a go at the Da Vinci bridge. Turns out it's quite difficult, especially with a child that is incapable of understanding instructions I mean quite literally can't take them in), and one that is but … Continue reading 30 Days Wild – Day 7
Hoop Jumping: Endurance and pitfalls
Things have been intense here, hence silence… but it’s because of an appointment that was sprung on us. One we have been waiting for, but was arranged quite last minute. So we left our house at 7:30 in the morning to go to a private clinic (90 minutes away from our house) for a … Continue reading Hoop Jumping: Endurance and pitfalls
A Pleasant Chaos 